About Us

The PGG is a UK and Ireland wide, multidisciplinary organisation with membership open to all health professionals involved in care and management of:

Couples / patients affected by or at risk of having a baby with a hereditary disorder
Couples / patients planning fertility treatment and pre-implantation genetic testing for structural re-arrangements and monogenic conditions
People with fertility issues caused by a genetic finding or being investigated for recurrent pregnancy loss
The mission of the group is to identify and promote appropriate care in this group of patients and their pregnancies to improve the quality of care offered.

The specific aims of the PGG are:

To promote multi-disciplinary models of care and develop education to enable health professionals involved with the management of pregnant women to be aware of, and be able to offer, appropriate information and tests to couples pre-pregnancy and in pregnancy to allow the diagnosis and management of single gene and chromosomal disorders that can present and have implications in pregnancy.
To facilitate collaboration of multidisciplinary research into single gene and chromosomal conditions that can arise and cause problems during a pregnancy
To provide a forum for the presentation of data and discussion of challenging areas involved in the care of this group of patients and their families
To be a stakeholder and opinion leader in the UK discussion on matters relating to single gene and chromosomal conditions that can arise and cause problems during a pregnancy
To debate and advise on ethical issues in single gene and chromosomal conditions that can arise and cause problems during a pregnancy

Steering Group Members

Samantha Doyle Consultant in Clinical Genetics (Co-Chair)

Stephanie Allen Consultant Clinical Scientist (Co-Chair)

Audrey Smith Consultant in Clinical Genetics

Jennifer Campbell Consultant in Clinical Genetics

Jessica Woods SpR in Clinical Genetics

Donna Kirwan National Midwifery lead for Genomics

Ruth Horn Professor of Medical Ethics

Mark Kilby Honorary Consultant of Fetal Medicine (RCOG Rep)

Fionnuala Mone Clinical Lecturer and Consultant Fetal Medicine (RCOG Rep)

Panicos Shangaris Senior Clinical Lecturer and Consultant Maternal & Fetal Medicine

Meekai To Fetal Medicine Consultant

Tazeen Ashraf Consultant in Clinical Genetics

Sarah Hillman Associate Professor & Consultant in Obstetrics

Anna DeBurca Consultant in Medical Ethics

Sunayna Best SpR in Clinical Genetics

Natalie Chandler Research fellow & Laboratory Scientist

Louise Monkman Clinical Scientist

Claire Penman Genetic Counsellor

Gayle Vincent Principal Genetic Counsellor

Hannah Massey SpR in Clinical Genetics

Pooja Dasani Principal Genetic Counsellor

Victoria Arthur Genetic Counsellor

Communications sub-group	Policy & Guidelines sub-group	Education & Meetings sub-group
Stephanie Allen	Tazeen Ashraf	Panicos Shangaris
Holly Ellard	Louise Monkman	Jess Woods
Ailidh Watson	Sunayna Best	Claire Penman
Jamey Thom	Cathryn Moss	Harriet Copeland
	Devon Haynes	Hannah Massey
	Evangelia Karampetsou	Fiona McKay